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Exploring Bioethics

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Corrections and Supplementary Information

Module 4

References and Resources

Alzheimer’s Disease


Alzheimer’s Association. 2008. What is Alzheimer’s? Retrieved March 29, 2008, from http://www.alz.org/alzheimers_disease_what_is_alzheimers.asp Exit disclaimer.

Grady, D. 2007. Testing for Alzheimer’s in the absence of a gene that says ‘yes’ or ‘no,’ the value of one that says ‘maybe’ is questioned. New York Times, December 26.

Hill, J.M., Bhattacharjee, P.S., and Neumann, D.M. 2007. Apolipoprotein E alleles can contribute to the pathogenesis of numerous clinical conditions including HSV-1 corneal disease. Experimental Eye Research, 84: 801–11. Also available at http://www.pubmedcentral.nih.gov/ articlerender.fcgi?artid=2217677.

National Institutes of Health. 2007. Alzheimer’s disease genetics fact sheet. Retrieved March 29, 2008, from http://www.nia.nih.gov/Alzheimers/Publications/geneticsfs.htm.

Sadowki, M., and Wisniewski, T.M. 2004. 100 Questions and Answers about Alzheimer’s Disease. Boston: Jones and Bartlett Publishers.

MEN II


Hurd, R. 2006. Multiple endocrine neoplasia (MEN) II. Retrieved March 29, 2008, from http://www.nlm.nih.gov/medlineplus/ency/article/000399.htm.

Norman Endocrine Surgery Clinic. 2007. Multiple endocrine neoplasia type 2 (MEN 2): Disorders of the parathyroid, adrenal, and thyroid cancer. Retrieved March 29, 2008, from http://www.endocrineweb.com/MEN/MEN2.html Exit disclaimer.

U.S. National Library of Medicine. 2006. Multiple endocrine neoplasia. Retrieved March 29, 2008, from http://ghr.nlm.nih.gov/condition=multipleendocrineneoplasia.

HNPCC


Cleveland Clinic. 2006. Hereditary non-polyposis colorectal cancer. Retrieved March 29, 2008, from http://www.clevelandclinic.org/registries/inherited/hnpcc.htm Exit disclaimer.

Gene Reviews. 2006, November 9. Hereditary non-polyposis colon cancer. Retrieved August 26, 2008, from http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=hnpcc.

Mayo Clinic. 2007. Genetic testing for colon cancer: Should you consider it? Retrieved May 29, 2009, from http://www.riversideonline.com/health_reference/Cancer/HQ00448.cfm Exit disclaimer.

Stanford Cancer Center. 2008. Hereditary nonpolyposis colon cancer (HNPCC). Retrieved March 29, 2008, from http://stanfordhealthcare.org/medical-conditions/cancer/lynch-syndrome.html Exit disclaimer.

U.S. National Library of Medicine. 2006. Hereditary nonpolyposis colorectal cancer. Retrieved March 29, 2008, from http://ghr.nlm.nih.gov/condition=hereditarynonpolyposiscolorectalcancer.

Retinitis Pigmentosa


Foundation Fighting Blindness. 2008. What is retinitis pigmentosa? Retrieved March 29, 2008, from http://www.blindness.org/eye-conditions/retinitis-pigmentosa Exit disclaimer.

Griggs, P. 2006. Retinitis pigmentosa. Retrieved March 29, 2008, from http://www.nlm.nih.gov/medlineplus/ency/article/001029.htm.

General Genetic Testing


Kolata, G. 2008. $300 to learn the risk of cancer of the prostate. New York Times, January 17.

Lewin, T. 2000. Boom in gene testing raises questions on sharing results. New York Times, July 21.

Videos


Canadian Broadcasting Corporation. 2001. Amanda’s Choice. For more information, see http://www.filmakers.com Exit disclaimer.
This film looks at a rare form of the disease—early-onset Alzheimer’s—and how it affects numerous generations of one family.

Kartemquin Films. 2008. In the Family. For more information see http://inthefamily.kartemquin.com/ Exit disclaimer.
This is a documentary film about hereditary breast and ovarian cancers and predictive testing for them.

Oregon Public Broadcasting. 1997. A Question of Genes: Inherited Risks. For more information, contact Oregon Public Broadcasting at 800-440-2651.
This program covers seven vignettes about genetic testing and genetic information, including topics such as prenatal testing for cystic fibrosis and a gene that serves as a marker for heart disease as well as Alzheimer’s disease; the relevant scientific goals and business interests of a company involved in genetic research; accessibility to genetic testing; and testing for a predisposition to breast and ovarian cancers.

Schwerin, Noel. 2003. Bloodlines: Technology Hits Home. For more information, see http://www.pbs.org/bloodlines Exit disclaimer.
The Bloodlines project reveals how new life technologies are raising ethical, legal, and social questions as cutting-edge science intersects with the law.

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