Rare Disease and Scientific Inquiry BannerLesson 3 BannerBarActivity 3: A Common Thread

Patrick's Family Tree (Accessible Version) Medical Reference Manual Patrick's Family Tree Patient Video Note: Students could also explore the Marfan syndrome section of the Positive Exposure site ( www.positiveexposure.org/marfan.html ). Fashion photographer Rick Guidotti and Diane McLean, MD, PhD, MPH, wanted to share the beauty of rare disease patients, so, in 1997, they founded Positive Exposure, starting with photos of some people with albinism. The site now features people with almost 30 diseases.

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